Sponsor: Patient-Centered Outcomes Research Institute - PCORI
Sponsor Study ID: NET-PRO
Study Title: Neuroendocrine Tumors Patient Reported Outcomes (NET PRO)
CTO #: 103541
NCT Number: NCT05064150
Phase: N/A
Protocol Type: Health Services Research
Age Group: Adults
Disease Sites: Lung; Other Digestive Organ; Pancreas
Study Objectives: To describe the frequency of treatment regimens and examine their association with symptom burden and PROs and HRQol outcomes. Enroll a cohort of patients to collect HRQol and PROs data every 6 months, for 18 months (i.e.: baseline, 6, 12 and 18 month follow-up surveys). We will determine what combinations of therapy are being used, and the changes in symptoms, PROs and HRQoL associated with these different therapeutic choices.